Medical Update and...SCHOOL!

Hudson has been seeing all of his doctors for follow ups since we've been back. He had an MRI of his left hip to check for arthritis in an effort to determine if that is what's causing his limp. No results on that yet. Today we saw his pulmonologist, and she isn't happy with his current sleep study results. The sleep study showed central and obstructive apnea, as well as high CO2 levels. She ordered an xray to check his adenoids, and if that's the problem, a simple surgery will fix it. If they're not the issue, she'd like to try Cpap on him. At this point I'm hoping for the surgery because I cannot imagine my sensory kid wearing a Cpap mask! We should know the xray results soon. She also suggested that switching to a J-tube instead of Hudson's G-tube may help with his stomach problems caused by the addition of purees. If we do this, we can still feed him purees, but his formula feeds will go via the J-tube directly into his intestines, bypassing his stomach altogether. This is something we'll discuss with his GI next Monday. She also wants him to see the developmental doctor at CMHH who specializes in autism. Hudson does have autism, but it is a symptom of mitochondrial disease for him. I don't think it would hurt to get a consult from her. 

Wednesday Hudson sees his cardiologist, where he'll get the always nerve wracking echocardiogram done so we can check on the condition of his heart. We never know what to expect going into an echo because it seems that there's always a surprise. Later that day we also have an appointment with a new cardiologist, one who specializes in autonomic dysfunction. His mito doctor is hopeful that this doctor will be able to offer a solution for Hudson's abdominal migraines, as well as his overall autonomic dysfunction in general.

 The really big news is that tomorrow Hudson is going to go to school! It will definitely be an emotional day. I know he will love it though. For the past two years Hudson hasn't medically been well enough to go to school, so he has received therapy and school services from the district on a homebound basis. This summer his mito doctor cleared him to attend school on the campus. He will be in the PPCD class, basically a Pre-K class for developmentally delayed children. The class is M-F, from 8 - 11. His therapists will hold their therapy sessions with him while he is at school. I am very nervous, but I do know that he's in great hands there. Medically, we will try to make sure he doesn't get sick often, and if he does, we'll have to discuss the risks vs. the benefits with his mito doctor. My little Huddy going to school! It will be a tearful, but happy morning tomorrow.