Update

It's been awhile!  I guess an update is long overdue.

Hudson has been doing pretty great.  He completed his EPI-743 trial in January.  We went to our follow up at Stanford with Dr. Enns, and he was amazed with how great Hudson looked!  He explained to us that the outcomes he is seeing out of the emergency treatment trials so far are not progressively upwards trending the entire time, rather they are an up and down or up and plateau type response, but at this point, EPI-743 is the most promising thing we have!  Pending approval from his cardiology appointments, Dr. Enns elected to keep Hudson on the trial medication, which we were hoping for and are thrilled about!  About a week after returning home, we received word that his heart studies looked great, showing no progression for the time being, and we were finally cleared to continue the clinical drug.  This is a blessing and we are truly thankful.

Hudson caught a respiratory virus that landed him in the hospital last week, honestly I haven't seen him that sick with a bug since he was about 2 years old.  It was quite scary, and I'm glad he seems to be over the worst part now.  As much as I hate being in the hospital, I am glad it is there to help Hudson through the tough times.  Thanks everyone for your prayers and thoughts.

Also, A BIG THANK YOU to everyone who came out for the big Team Hudson/Team Trace fundraiser!  We are so blessed to have such amazing friends and family.  We were able to turn in approximately $33,000 to the United Mitochondrial Disease Foundation, which is an incredible and humbling feat.  Such an event would never have been possible without the support of this wonderful community, and for that, we are eternally grateful.

Please please keep sweet Kyle in your prayers.  He is a child suffering from mito in the terminal stages of this awful disease.  He has fought a long and brave battle, and is an inspiration to so many.  Thank you.